McHose-Space resolution advances in Assembly

TRENTON — A resolution sponsored by Assemblywoman Alison Littell McHose and Assemblyman Parker Space that designates April of each year as "Sarcoidosis Awareness Month was approved by the Assembly Health and Senior Services Committee.

Sarcoidosis is a systemic inflammatory disease that can affect any organ. Sarcoidosis and cancer may mimic one another, making the distinction difficult. Its cause is unknown and there is no cure.

“This designation is needed to heighten public awareness about this neglected, chronic and disabling disease,” said McHose, R-Sussex, Warren and Morris. “The best way we can support individuals who suffer from the disease is to educate the public and increase the understanding of this disease between its victims, the medical profession and the citizens of New Jersey. I’m grateful to Ms. Tornillo-Harris for bringing this important issue to my attention.”

McHose was made aware of the disease from one of her constituents, Nancy Tornillo-Harris, who is in the process of establishing a Sarcoidosis support group in Northwest Jersey.

“Receiving a proper diagnosis begins with public awareness. Education is one of our best weapons against this debilitating disease,” said Space, R-Sussex, Warren and Morris. “This designation is an important step in the right direction in our efforts to heighten awareness.”

Sandra Conroy, president and founder of the NationalSarcoidosisResourceCenter, said diagnosis is often difficult, which adds to the frustration of those who are experiencing symptoms.

"Sarcoidosis is often mistaken for other diseases, such as multiple sclerosis, lupus, rheumatoid arthritis, cancer, and tuberculosis," Conroy said. "There are thousands of people in New Jersey that are living with Sarcoidosis and support from Assemblywoman McHose and Assemblyman Space means so much."

McHose, who noted that NFL Hall of Famer Reggie White and actor/comedian Bernie Mac died from complications of Sarcoidosis, said she is grateful her legislative colleagues are taking quick action on the resolution in an effort to show support for individuals who suffer from the disease and their families.

A companion joint resolution has been introduced in the Senate by State Sen. Steve Oroho, R-Sussex, Warren and Morris.

Sarcoidosis most commonly affects young adults of both sexes, although studies have reported more cases in females. Common symptoms are vague, such as fatigue unchanged by sleep, lack of energy, weight loss, aches and pains, arthritis, dry eyes, swelling of the knees, blurry vision, shortness of breath, a dry hacking cough or skin lesions.

For more information on the Northwest Jersey Sarcoidosis Support Group, contact Tornillo-Harris at 973-827-5518.